Catch the Shot is partnering up with Jhett's family to help raise money for Prader-Willi Syndrome research. We were lucky enough to meet Jhett through Doe Creek Middle School Football. Jhett's dad, Jarrod, was an Assistant Coach for the class of 2019. The young men on the team were touched by Jhett's battle and made him an honorary team captain. We were also inspired by Jhett and his family and are determined to help. In talking with Jhett's parents, Catch the Shot is going to help raise money for research. There will be various ways we do this throughout the year. We started with the Fighter Jhett Classic golf outing held in May 2014. This first event was a huge success and we look forward to working on many more in the years to come! Mark your calendars for the 6th Annual Fighter Jhett Classic scheduled for August 3, 2019!
Now let's meet Jhett! He joined the Lee family on August 4th, 2013 and is the youngest son of Jarrod & Jen. Due to complications, he spent his first few weeks of his life in the hospital and on day 23 was diagnosed with Prader-Willi Syndrome (PWS). Jen has shared the following information with us about Prader-Willi and Jhett.
So what is PWS? It is the most common known genetic cause of life-threatening obesity in children. Although the cause is complex, it results from an abnormality on the 15th chromosome. PWS typically causes low muscle tone, short stature (if not treated with growth hormone), incomplete sexual development, and a chronic feeling of hunger that, coupled with a metabolism that utilizes drastically fewer calories than normal, can lead to excessive eating and life-threatening obesity. The food compulsion makes constant supervision necessary. Average IQ is 70, but even those with normal IQs almost all have learning issues. Social and motor deficits also exist. At birth, the infant typically has low birth weight for gestation, hypotonia (weak muscles), and difficulty sucking due to the hypotonia (which can lead to a diagnosis of failure to thrive). The second stage, "thriving too well", has a typical onset between the ages of two and five, but can be later. The hyperphagia (extreme unsatisfied drive to consume food) lasts throughout their lifetime. This phase is also characterized by increased appetite, weight control issues, motor development delays along with unique medical issues. Children with PWS have sweet and loving personalities, but some behavior problems can arise.
Jhett is a precious baby boy that will face many struggles throughout his life, but is very fortunate to have a great deal of family and friends that care deeply for him. His supporters are committed to raising money to help fund continued research efforts in hope for a better future for Jhett and many others.
So now that you know about how awesome Jhett is and what challenges he faces, let's join together and help! We'll keep this page updated with future opportunities to get involved, so stay tuned...
Here's a picture of Jhett with his Dad, Coach Lee. And here's a picture of the football team, managers and cheerleaders at the 2014 season kick-off dinner.
Now let's meet Jhett! He joined the Lee family on August 4th, 2013 and is the youngest son of Jarrod & Jen. Due to complications, he spent his first few weeks of his life in the hospital and on day 23 was diagnosed with Prader-Willi Syndrome (PWS). Jen has shared the following information with us about Prader-Willi and Jhett.
So what is PWS? It is the most common known genetic cause of life-threatening obesity in children. Although the cause is complex, it results from an abnormality on the 15th chromosome. PWS typically causes low muscle tone, short stature (if not treated with growth hormone), incomplete sexual development, and a chronic feeling of hunger that, coupled with a metabolism that utilizes drastically fewer calories than normal, can lead to excessive eating and life-threatening obesity. The food compulsion makes constant supervision necessary. Average IQ is 70, but even those with normal IQs almost all have learning issues. Social and motor deficits also exist. At birth, the infant typically has low birth weight for gestation, hypotonia (weak muscles), and difficulty sucking due to the hypotonia (which can lead to a diagnosis of failure to thrive). The second stage, "thriving too well", has a typical onset between the ages of two and five, but can be later. The hyperphagia (extreme unsatisfied drive to consume food) lasts throughout their lifetime. This phase is also characterized by increased appetite, weight control issues, motor development delays along with unique medical issues. Children with PWS have sweet and loving personalities, but some behavior problems can arise.
Jhett is a precious baby boy that will face many struggles throughout his life, but is very fortunate to have a great deal of family and friends that care deeply for him. His supporters are committed to raising money to help fund continued research efforts in hope for a better future for Jhett and many others.
So now that you know about how awesome Jhett is and what challenges he faces, let's join together and help! We'll keep this page updated with future opportunities to get involved, so stay tuned...
Here's a picture of Jhett with his Dad, Coach Lee. And here's a picture of the football team, managers and cheerleaders at the 2014 season kick-off dinner.
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